Lymphovenous Canada: Library Book, films, videos and other useful resources

International Lymphoedema Framework (ILF) Documents:

BOOKS and PAMPHLETS:

BIG BOOK of LYMPHOEDEMA FOR CHILDREN: This delightful book was produced by Jacquelyne Todd (author) and Open Door Design with the support of the Leeds Lymphoedema Service in the UK. The Big Book of Lymphoedema is designed for children with lymphedema aged between 1 and 10 years. It includes activities, information, practical help and advice with along with interactive elements (i.e. hidden doors and windows where more information can be found).

The Big Book of Lymphoedema can be bought through the Lymphedema Association of Ontario. To buy a copy of this publication contact the LAO at: 416-410-2250 or by e-mail at: lymphontario@yahoo.com.

LYMPHEDEMA MANAGEMENT: HEALTH PROFESSIONAL VERSION  This on-line publication produced by the U.S. National Cancer Institute provides prevention, treatment and references to scientific research. Short and easy to read yet at the same time quite thorough. Latest update: September 2008. This document is down loadable at: http://www.cancer.gov/cancertopics/pdq/supportivecare/lymphedema/healthprofessional/page1

LYMPHEDEMA - UNDERSTANDING AND MANAGING LYMPHEDEMA AFTER CANCER TREATMENT, as its dust jacket suggests, is an up-to-date comprehensive guide to every aspect of lymphedema. Although this book contains some information which geared to an American audience operating in a U.S. health care system, most of the information is applicable to anyone who has an interest in learning more about lymphedema after cancer treatment.

It is well-balanced, reasoned and thorough, covering early diagnosis and cautions, treatment options, exercise and cost. The book even tackles the topic of clinical trials (The Future of Lymphedema) - flagging areas that are currently under review as well as others that may be undertaken in the future. Its glossary is excellent. From experts at the American Cancer Society, 2006, published by American Cancer Society Health Promotions, 1599 Clifton Rd. NE, Atlanta, Georgia 30329 ISBN 0-944235-56-5 $16.95 American.

DISEASES OF THE LYMPHATICS: by Browse, Norman, and Burnand, Kevin G., and Mortimer, Peter S., Arnold Publishers 2003 ISBN 0340762039

A comprehensive and authoritative book which covers all aspects of the lymphatic system and its diseases. Divided into two sections, the book first discusses in detail the anatomy, physiology, pathology and investigation of the lymphatic system as well as the principles underlying medical and surgical treatment. The second section covers the clinical management of specific conditions. Throughout, the book combines both surgical and non-invasive therapeutic approaches. Written by three leading authorities in the study of lymphatic disease, the text also has specialist contributions from leading international figures from Europe and the USA. The book will be of particular interest to practising vascular surgeons, angiologists, vascular radiologists and vascular technicians. Available from www.alibris.com or other booksellers. Approximately $300.00 hardback.

LYMPHOEDEMA: ADVICE ON SELF-MANAGEMENT AND TREATMENT: also by Peter Mortimer, Professor of Dermatological Medicine at the University of London and Jacquelyn Todd, Physiotherapist Consultant in Lymphoedema, Leeds Teaching Hospitals, NHS Trust. Beaconsfield Publishers Ltd., Beaconsfield, Bucks, UK 2007. ISBN 978-0-906584-59-0 U.K. retail price: 4.95 pounds; discounts for multi-copy purchases.

This is the third edition of this 50 page soft cover booklet which is aimed at educating patients with lymphedema on how to manage their condition. The booklet contains medical information in plain language, exercises and massage that you can do yourself. Royalties from the sale of this publication go to three charities: Leeds Lymph Link, Breast Cancer Research Action Group, and the Lymphoedema Research Fund.

For information on how to order this book visit the Beaconsfield web site at: www.beaconsfield-publishers.co.uk or e-mail them at: books@beaconsfield-publishers.co.uk

Proceedings of the 2nd National Seminar on Evidence-based and Integrated Medicine for Lymphatic Filariasis, other Chronic Dermatoses and HIV/AIDS, Kasaragod, South India, Feb. 14-16, 2007.

A facinating collection of articles on the treatment of lymphatic related diseases from the perspective of the Indian medical community. To get a copy of this document contact the Institute of Applied Dermatology, Kasargod, Kerala, South India through their web site at: www.indiandermatology.org or by e-mail at:iadorg@satyam.net.in

OVERCOMING THE EMOTIONAL CHALLENGES OF LYMPHEDEMA: December 2005, by Elizabeth McMahon, PhD Published by Lymph Notes, 2929 Wester St., San Francisco, CA 94123. Tel: 415-441-7140 ISBN: 0-9764806-2-X, 476 pages, paperback list price: $34.95 U.S.

This book will help you:

• Understand the emotional challenges of lymphedema
• Overcome these challenges and avoid common pitfalls
• Recognize problems and know where to go for help
• Communicate effectively with family, friends, coworkers, and health care professionals
• Set and prioritize your goals
• Identify where you are in the process of changing
• Choose specific actions for reaching your goals
• Monitor your progress and maintain your gains
• Learn the ten signs of good coping and six warning signs of ineffective coping

Also available from Lymph Notes are the following publications: "Living Well with Lymphedema" and coming out soon, "Voices of Lymphedema". Lymph Note publications are available for sale at Chapters in Canada.

A BREAST CANCER PATIENT'S GUIDE TO PREVENTION AND HEALING - by Jeannie Burt and Gwen White, 1999 Hunter House Publishers, Publishers Group West, 1700 Furth Street, Berkeley CA 94710 $20.00 Canada soft cover.

A good introductory publication for patients at risk or those with existing lymphedema. Lots of personal stories and exercises. Some of the information in this book is a bit dated, especially as it relates to the use of extremity pumps which are helpful to some people with lymphedema and herbal remedies. Note to readers - the section on Coumarin (Benzo-pyrones) needs to be read with caution. This drug is not approved for sale in Canada because it has not been found effective and liver damage has been associated with its usage.

CANADIAN BROCHURES AND VIDEOS:

• LYMPHEDEMA: What breast cancer patients need to know - was a project of the Thunder Bay Regional Health Sciences Centre, Regional Health Care and the Northern CAncer Research Foundation. 29 pages in length, the booklet is covers basis information on lymphedema, prevention, treatment and exercise accompanied by small picture. Well done: easy to read and understand. For a copy of this excellent publication contact the Thunder Bay Regional Health Sciences Centre, Regional Cancer Care at: 980 Oliver Road, Thunder Bay, Ontario P7B 6V4. Phone: 807-684-7200 or toll-free at: 1-877-696-7223.

• GETTING BACK ON TRACK AFTER TREATMENT: Life After Treatment - developed with the support of the Canadian Breast Cancer Foundation - Ontario Chapter, Princess Margaret Hospital, patients, survivors and community partners, 2004. Includes information from pages 13 to 19 on what lymphedema is, how to reduce your chances of developing lymphedema and how it is treated if lymphedema happens to you.

  This patient education booklet on survivorship responds to the gap in support that many breast cancer patients have felt after completing their medical treatment. It is a comprehensive guidebook that uses non-medical terms to help patients cope with the physical, psychological and practical concerns they may face long after completion of active treatment. It offers advice and resources on a wide range of topics, from dealing with fatigue, finances and faith, to the social and emotional needs of a patient as they strive to return to everyday life.

  This booklet is available through the Internet at: www.uhn.ca/patient/health_info/references/breastcancer_booklet.asp

• Abreast in the West: is a quarterly newsletter produced by the Alliance for Breast Cancer Information and Support, B.C. and Yukon (ABCIS) to provide current and accurate information to those living with breast cancer, their families, and supporters .This publication can be accessed through the following website: http://www.abreastinthewest.ca

  For more information you can contact them at: info@abreastinthewest.ca

• ABREAST IN A BOAT: An organization which has produced a video which documented the ground-breaking experience of Professor Susan Harris and other members of this Vancouver Dragon boat team in proving that women who have had breast cancer treatment can exercise without developing lymphedema! Encourages other breast cancer survivors to start their own dragon boat teams to get active. Incredibly inspirational. Great information.

  For information on this organization and how to get their video: www.abreastinaboat.com/health.htm

• MANAGEMENT OF BREAST CANCER RELATED LYMPHEDEMA A publication of the B.C. Cancer Agency Lymphedema Control Program which began in September 1987. Revised June 2004. Can be requested in pamphlet form from the BCCA library at: 1-800-663-3333/877-6000 local 2688 or the Cancer Information Service 1-888-939-3333 or accessed through the internet at: www.bccancer.bc.ca/PPI/TypesofCancer/Breast/Rehabilitation/default.htm
• CMA Journal Clinical Practice Guideline on breast cancer-related lymphedema

TELEVISION PROGRAMS:

My Shocking Story - My Big Foot:

This documentary on Lymphedema was aired on The Learning Channel on January 27 at 9pm, and again on January 28 at 12am, 2008. It was produced by the Discovery Channel and was first shown on January 9, 2008 on TLC. The show deals with a 45 year old British woman - Vickie - who has had lymphedema since she was a child and now lives in poverty as a single mom with her 8 year old daughter For more information on this story go to: www.discoverychannel.co.uk/myshockingstory/bigfoot/index.shtml

Hidden Condition: Elephantiasis anguish in Ghana:

Filmed by BBC medical correspondent, Fergus Walsh, the film was shown in November 2006. It shows the disfiguring disease lymphatic filariasis, known as elephantiasis, which continues to cause misery in Africa despite medical advances. Doctors say they have the drugs to eliminate the illness but there is no money to distribute them. This report contains images viewers may find disturbing. For information on why the news item was filmed go to: www.bbc.co.uk/blogs/theeditors/2006/11/hidden_condition.html. The actual news item can be viewed at: http://news.bbc.co.uk/player/nol/newsid_6140000/newsid_6149100/6149198.stm?bw=nb&mp=wm&news=1&nol_storyid=6149198&bbcws=1

Note: since this documentary was shown the Liverpool School of Tropical Medicine has received $23 million March 8, 2007, from the Bill and Melinda Gates Foundation to develop a new method to control and treat lymphatic filariasis (tropical lymphedema)

MEDICAL JOURNALS:

THE JOURNAL OF LYMPHOEDEMA - is the UK biannual journal for improving practice, raising awareness and setting standards for care in Lymphoedema. Issues are available in print and on-line. To subscribe or submit articles visit their website at: http://www.lymphormation.org/

E-mail: lymph@u.arizona.edu Web site: International Society of Lymphology

LYMPHOLOGY - This long-standing journal is the official publication of the International Society of Lymphology. Lymphology is published quarterly. Institutional/individual subscription rate is $75.00 U.S. per year. The Journal contains original articles, editorials, abstracts and information regarding the International Society of Lymphology as well as original papers dealing with clinical and basic studies of the lymphatic system and related fields. Articles are subject to peer-review before being published. To subscribe or submit articles contact: Dr. Marlys Witte, Arizona Health Science Center, Dept. of Surgery, P.O. Box 245063, Tucson, AZ 85724-5063 USA.

E-mail: lymph@u.arizona.edu Web site: International Society of Lymphology

LYMPHATIC RESEARCH AND BIOLOGY - Lymphatic Research and Biology is a quarterly, peer-reviewed publication that provides an interdisciplinary forum for biomedical investigators to discuss current and anticipated developments in lymphatic biology and pathology. Yearly subscriptions are $219.00 in the U.S. and $263 outside of the U.S. Spawned by the U.S. Lymphatic Research Foundation, this journal is published by Mary Ann Liebert, Inc., 2 Madison Ave., Larchmont, N.Y. 10538-1961 U.S.A.

E-mail: info@liebertonline.com Web site: www.liebertonline.com

OTHER RESOURCES:

The American Cancer Society Lymphedema Publications:

Academy of Lymphatic Studies posters of the lymphatic system

This full colour set of three posters is printed on high-grade (10pt) and UV-coated poster board. The measurements are 18” x 24”. Contains detailed illustrations of the lymphatic system throughout the entire body which practitioners of CDT may find useful in their work. Price: $32.50 U.S. (PLUS S/H) for the set. A reduced price of $27.65 (plus $9.00 s/h)is available for a limited time. For more information phone 800.863.5935 or send an e-mail message to sales@acols.com.

The National Lymphedema Network web site and newsletter Lymphlinks has a very comprehensive list of videos, pamphlets, books and material produced from the 2002 NLN conference on CD and video. For more information go to: https://www.shop.lymphnet.org/